About Living Idiopathic Pulmonary Fibrosis

What is Living Idiopathic Pulmonary Fibrosis?

Living with Idiopathic Pulmonary Fibrosis Patient Support Community is a dedicated patient-to-patient support community for families affected by Idiopathic Pulmonary Fibrosis. Living with Idiopathic Pulmonary Fibrosis Patient Support Community is powered by BensFriends.org, a network of patient support communities for rare diseases, and is run by volunteer moderators who have been affected with Idiopathic Pulmonary Fibrosis disease.

Who can join Living with Idiopathic Pulmonary Fibrosis?

If your family has been affected by Idiopathic Pulmonary Fibrosis, consider Living with Idiopathic Pulmonary Fibrosis your second home. Living with Idiopathic Pulmonary Fibrosis as well as the rest of BensFriends.org’s patient communities, is free for members to join.

What is Idiopathic Pulmonary Fibrosis?

Idiopathic pulmonary fibrosis (IPF) is a serious lung disease. When you breathe in, oxygen moves through tiny air sacs in your lungs and into your bloodstream. From there, it travels to your organs. IPF causes scar tissue to grow inside your lungs and makes it hard to breathe. It gets worse over time.

IPF scar tissue is thick, like the scars you get on your skin after a cut. It slows oxygen flow from your lungs to your blood, which can keep your body from working as it should.

There’s no cure for IPF. For most people, symptoms don’t get better, but treatments can slow the damage to your lungs. (Source: WebMD).

What is BensFriends.org?

In 2007, Ben Muñoz suffered a rare form of stroke caused by an AVM. He was unable to find the support he needed during the most difficult time, so he created an online support community AVMSurvivors.org to connect with others like him. AVMSurvivors.org led to the founding of BensFriends.org, driven to provide patient-to-patient support communities for people living with rare diseases.

BensFriends.org is a network of patient communities for people living with rare diseases. Launched in November 2007, BensFriends.org provides valuable patient support by creating and running compassionate, responsive communities. BensFriends.org maintains dozens of patient communities and has changed thousands of lives.

You can learn more about BensFriends.org at http://www.bensfriends.org or watch one of our videos at http://www.youtube.com/BensFriendsVideos.